iv not posted for a while so thought id catch you up on whats been going on.

had eye hospital appointment. tests i had a while ago to see why my sight had gone down were fine so it was just a follow up to say 'no need to come back' or so i thought. even tho i thought my sight had stabelised since the tests it hasnt its continueing to deteriate and the docs have no idea why cos my eye and optic nerve are fine. so they are baffled and getting quite concenred. without knowing whts goin gon they cant stop it.

so im been refered to a specialist further up north to look at neurological causes. have to have more tests to see what my field of vision is doing. i think thats gone down too but waitin for test to say if it has before stressing.

so that was all bit of a shock. not prepared myself for any of that when i went to the hospital. just sitting and waiting now and hope this specialst can shed some light

also my aunty is sick with cancer in same year my mum , her sister, had exact same.

and to top it off been hounded by council tax people cos ex housemates havent paid their share of the bill. again very stressful.

keeping myself busy. got a big art project on the go creating a piece about hypermobiltiy syndrome. got lots of sufferes helping me by sending me pics of their aids, splints, injurys, etc which im going to use to create a female body. basicaly a collage of pics that show the true nature of the conditino and the severity of it that will be formed into a woman.
people have talked about developing it into posters for rheumatolagy depatments, leaflets, awareness etc for the hypermobility association so its took a big step up from what it was originally.
trying to get all the other projects out of the way as quick as possible so i can focus on this as its gonna take months to shift through all the pics and prepare them for the actual peice.

bendy wise pretty much the same as i was last time we spoke. shoulder is still not happy after it fell out when i was swmming (doctor recommended swimming i may add). its pulling quite hard now and the pain is constant. left leg is still pretty much spazzified. using a walking stick now when i need ot to help me when the chronic fatigue kicks in but cos its really hard using a walking stick and a white cane at the same time its only for emergancies. people keep suggestin a white walking stick cos they symbolise blindness but a walking stick isnt going to proide me with the informatio about my surroundings that a white cane does. dying to hear form other blindies who use walking sticks and a cane for tips.